As I was reading on Facebook the other day, my daughter's friend, the Dynamo, mentioned that she was stopped by someone on her way into class. The person asked the Dynamo, in all seriousness, what she did with Sunny, her guide dog, when the Dynamo was in class.
*blink*
Really?
So of course, being a smart ass, I joined in with several others of my questionable ilk and offered up some witty repartee that could've made for a quick response. Her professor, actually, posted the "winning" retort by saying that Sunny had been helping her grade papers and tests, but had a bad habit of sexting in class. I loved it.
It really got me thinking, though, about some of the dumb questions and assumptions that people have about any individual with a disability. I've been asked why I still work, how I run when I use a cane (?!), why I don't "just get physical therapy" or "just have surgery" to fix the issue, and many more. One of my favorite stories was when I had a clerk start speaking loudly and extremely slowly to me. I was kind of surprised, and didn't say anything, but when she counted out my change coin by coin, dollar by dollar, I got a little wary. After she was done, she patted my arm and said that I was very brave and strong, being out in the world by myself. I looked her straight in the eye and told her that while I couldn't walk like most people, my cognitive functioning was quite intact, unlike hers apparently was. She was offended, but guess what? So was I. Offended, insulted, and disgusted. Why assume an inability to care for oneself simply due to a disability?
Now, there are those who believe that being asked the stupid questions presents an opportunity for education, and that the flippant, sarcastic comebacks are not just disrespectful but destructive to the "community bond" that people with disabilities try to forge with "normal" people. OK, I'm going to take heat for this, but this is a place for honesty, so I'm not going to negate that now. First, in my not-at-all humble opinion, the condescension and obnoxiously intrusive questions convey a whole lot more disrespect than using humor to diffuse a potentially angry situation. Second, who in the ever loving hell came up with the idea that it is somehow our responsibility to forge a relationship with strangers who clearly don't respect us?
Maybe that seems unnecessarily harsh, but think about it. People will come up to someone with a disability and ask very personal questions without hesitation; they don't do that to the average Joe Public on the street. We are asked details about potentially traumatic events, we're asked to relive emotional struggles and to share our demons with strangers like they have some sort of right to know about them. What gives anyone the right? Don't get me wrong...when a little kid asks, "Why does she walk like that?" or "Why do you wear that?" or exclaims, "My grandma has a cane, too! Are you old like her?" I don't even blink. To me, that is the natural curiosity of a child coming through, and that, to me, truly is an opportunity for education. And yes, adult humans are curious as well, but adults are supposed to be hardwired with a modicum of discretion to temper that curiosity. Otherwise, instead of curious, they are perceived as merely intrusive and rude.
Next time you see someone in a wheelchair, with a guide dog, signing with a friend, or adapting in any other way, I implore you...stop and think. The question you're about to ask could make you look like a total ass. Consider that before you ask it!
A place for people with physical limitations who are seeking a path to good health, and a community to go along with it.
Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts
Friday, March 18, 2011
Tuesday, February 15, 2011
Obeying the Law
I'm sure everyone out there on the Internet is a cheerfully law abiding citizen. What? You're not? You occasionally speed, or you might possibly have happened to inhale when your buddies (NOT you!) had that smidgen of ganja in college? Hmm. Well ok, maybe we can settle on "mostly law abiding." We won't go any further than that, to protect the uh...innocent.
However, the law we need to discuss today applies more to those of us who have to be mindful of our activity levels, lest we pay for them in misery later. I refer, of course, to Newton's Third Law of Motion:
However, the law we need to discuss today applies more to those of us who have to be mindful of our activity levels, lest we pay for them in misery later. I refer, of course, to Newton's Third Law of Motion:
"For every action, there is an equal, and opposite, reaction."
"Translation: Push, and something pushes back."
It's a pretty simple concept, really. And while it has been tested and proven and retested and reproven in physics labs all over the world, anyone who has physical limitations and they will tell you that they do not need a lab. All we need is our daily lives to show us that if we push, our bodies will, unequivocally, push back. We know our limits, and yes, I'm talking to you too. Don't look away, come back here and admit it. You know your limits, but you don't always follow them, do you? Exactly. And neither do I.
My "official" limits, according to the Functional Capacity Evaluation are total restriction of things like kneeling and squatting, and that I can stand and/or walk up to ten minutes out of any given hour. Ummmm...yeah. The first part isn't too difficult to avoid. The second? Well, let's just say I break nearly every day of my life. Don't get me wrong: I own this decision. I blame no one for it, and I accept the consequences of my actions. But man, oh man, it hurts when I do it.
There are probably a zillion things every week that I do that I technically shouldn't. However, there is a fine line, a balance of sorts that one must fine between pushing and pushing too far. I do push a bit in order to try to keep the muscles that do work toned and strong. This compensates for the others that don't. I also do it to gain a little extra strength, in the hopes that some day it may work enough that I can adapt enough to walk on my own. Hasn't happened yet, I know. But never say never, right?
And part of it definitely traces back to pride. Yes, yes, I can hear it now: "Well duh, Mick, you know what goeth before a fall, and if you push too hard, you will fall." Believe it or not, I'm not completely clueless here. However, I have always been an active, physically strong person, and losing that aspect of my very self just isn't an acceptable option for me. My lower body strength tanked so fast and so hard, and there is really no way for me to reclaim it as of yet. My upper body, though, has to be strong on the days when I find myself in need of my crutches or wheelchair. So I do a lot of core strengthening (not enough, though!), and I lift weights as well. I love the feeling of my muscles working; it's a sensual experience knowing that at least parts of my body are toned and strong. To me, strength is sexy. I want that in myself as well. I find that line, and I push to it with my upper body.
However, I am quite guilty of pushing too far on the lower body, and paying for it later. Case in point: last year, my friend The Silent One and I went to New Orleans. As shutterbugs, we spent from early morning til last in the evening eating, drinking (oh, the drinking!), exploring, and shooting all over the French Quarter. We walked everywhere, scoffing at taxis, and forgetting about street cars until it was too late. Adrenaline was my main drug of the weekend, feuling my ever present desire to get that next shot with her, see the next treasure of the Big Easy, or meet that next fascinating local personality. By the time I got on the plane to go home, that adrenaline had started to fade, and I knew I was in for some major problems. Anyone who has ridden on a plane knows how cramped it is, so when I stood up to change planes in Atlanta, I was nearly dropped from the sudden tidal wave of excruciating pain. It took my breath away, and flooded my eyes at the same time. I tend to wait until I'm nearly the last person off so as not to hold people up, but even still, my ability to walk was severely hindered. I did it, made it home, and managed a snippet of second-wind adrenaline when I saw the kids.
The next morning, however, brought me right back where I had been the night before. I was hitting the pain pills before I ever left the house that morning for work. I scraped my way through work, came home, and was down for the rest of the night. I paid for that excursion for about 4 or 5 days, but I said then, and I would say now, that in the grand scheme of my life, it was worth every second.
So now, I'm leaving on Friday morning for a long weekend. Guess where I'm going? And guess with whom I'm going? Yup. The Silent One and I, along with Lucille and Alejandro (our cameras), will be back in the French Quarter on Friday afternoon, shooting. Our favorite Mardi Gras krewe has their parade on Saturday night, and we will be there. It means standing outside for 2 hours ahead of time to get a good spot, and then dealing with being jostled and knocked during the parade from the crowd. From there, we head to Bourbon Street to uh...enjoy the local night life. We'll do all the same things plus some new ones this year. We will pack as much fun as humanly possible into 4 days.
And then, on Monday night, I will fly home.
I do this knowing that the rest of next week will be sheer physical agony. I do this knowing that I will need to use my crutches, take extra doses of my pills (yes, floater doses safely built into the regimen), and be nearly useless after work. I do this knowing that there is the potential for damage if my knee cannot handle the pressure and I fall. I do this knowing that there are people in my life who think I am a complete idiot for my choices, and who will roll their eyes and tell me that I am indeed, an idiot.
But the bottom line?
Is that I will Push.
Labels:
disability,
life,
Mardi Gras,
New Orleans,
Newton,
pain,
pushing too far
Sunday, February 6, 2011
Riding the stress train
For the past two weeks, things in my life have been really stressful. Like most people, this can derail the best intentions for healthy living, whether it's giving in to the craving for rich, comfort foods, or being too worn out to exercise. For someone with a disability, this can also mean an increase in pain levels as well. It's at this time, though, when we really need to be the most careful, by making better choices in food, staving off an immune crash with vitamins if our diet is more off than we'd like, and at least attempting to do some gentle movement and stretching to decrease the pain.
In my particular case, I am not a stress eater. In fact, quite the opposite. But while this may appear at first to be a blessing instead of a curse, it does make my usual approach to food much more difficult. Oftentimes, when stressed, I will have to contend with low level nausea at the mere idea of food. This renders me unable to eat some of my usual high protein options, instead reaching for simple carbohydrates, which my stomach handles much better. I do still try for the Greek yogurt in the morning, as I have several medications that I need to have on board every day. But to take them requires food, so there you go. Tea is another staple of my life, so I'm glad I'm able to still drink it without it making me sick!
So when stress hits, and we're off our feed, what is the answer? Let's look at some potential options.
If stress eating is your bane, don't vilify yourself for wanting the comfort foods. Deprivation just leads to binging, which is pointless sabotage. Instead, try for some basic modifications to those foods to at least make them healthier. Is mac and cheese your balm? Add some broccoli and cauliflower to it, and maybe some ham for protein. Or how about mashed potatoes smothered in gravy? Make them with low sodium chicken broth; it'll have lower fat than cream, and more taste, too. How 'bout that delicious wedge of chocolate cake? Go ahead and indulge, but make it a slender slice, and top it with a few handfuls of fresh berries, which are packed with antioxidants and vitamin C.
When stressful times hit, appropriate amounts of rest are vital to everyday functioning. Don't skimp on sleep, even if it means bailing on some social outings. If your sleep is interrupted due to the stress, do some creative image meditations, and at least rest your mind and body. Melatonin can assist in restful nights, along with bedtime routines. However, medical sleep aids should only be a last resort, and supervised by a physician.
Exercise is tough to do when stress rears its ugly head. Extra fatigue and increased pain levels suck motivation faster than a Sham Wow on a water spill. If the idea of heading off to the gym makes you want to crawl into a hole, skip it. But don't let your body off the hook completely. Go for a walk to clear your head, pop a favorite dvd into the player and do the treadmill/elliptical/bike. Lift some weights, concentrating on pouring your stress into each rep. Or turn on some guilty pleasure music and dance your uh...anatomy...off. Not that I would ever even recognize the song, but um, let's just say I've heard that stuff like Rihanna's Pon de Replay can be catchy and boppy enough to get you moving. You don't have to run a marathon or work out for several hours to be effective. Just move.
Part of our stress can easily be attributed to feeling out of control of our situation. In keeping control over our basic health, we remind ourselves that we do have the power to achieve our goals of better health.
Cheers!
In my particular case, I am not a stress eater. In fact, quite the opposite. But while this may appear at first to be a blessing instead of a curse, it does make my usual approach to food much more difficult. Oftentimes, when stressed, I will have to contend with low level nausea at the mere idea of food. This renders me unable to eat some of my usual high protein options, instead reaching for simple carbohydrates, which my stomach handles much better. I do still try for the Greek yogurt in the morning, as I have several medications that I need to have on board every day. But to take them requires food, so there you go. Tea is another staple of my life, so I'm glad I'm able to still drink it without it making me sick!
So when stress hits, and we're off our feed, what is the answer? Let's look at some potential options.
If stress eating is your bane, don't vilify yourself for wanting the comfort foods. Deprivation just leads to binging, which is pointless sabotage. Instead, try for some basic modifications to those foods to at least make them healthier. Is mac and cheese your balm? Add some broccoli and cauliflower to it, and maybe some ham for protein. Or how about mashed potatoes smothered in gravy? Make them with low sodium chicken broth; it'll have lower fat than cream, and more taste, too. How 'bout that delicious wedge of chocolate cake? Go ahead and indulge, but make it a slender slice, and top it with a few handfuls of fresh berries, which are packed with antioxidants and vitamin C.
When stressful times hit, appropriate amounts of rest are vital to everyday functioning. Don't skimp on sleep, even if it means bailing on some social outings. If your sleep is interrupted due to the stress, do some creative image meditations, and at least rest your mind and body. Melatonin can assist in restful nights, along with bedtime routines. However, medical sleep aids should only be a last resort, and supervised by a physician.
Exercise is tough to do when stress rears its ugly head. Extra fatigue and increased pain levels suck motivation faster than a Sham Wow on a water spill. If the idea of heading off to the gym makes you want to crawl into a hole, skip it. But don't let your body off the hook completely. Go for a walk to clear your head, pop a favorite dvd into the player and do the treadmill/elliptical/bike. Lift some weights, concentrating on pouring your stress into each rep. Or turn on some guilty pleasure music and dance your uh...anatomy...off. Not that I would ever even recognize the song, but um, let's just say I've heard that stuff like Rihanna's Pon de Replay can be catchy and boppy enough to get you moving. You don't have to run a marathon or work out for several hours to be effective. Just move.
Part of our stress can easily be attributed to feeling out of control of our situation. In keeping control over our basic health, we remind ourselves that we do have the power to achieve our goals of better health.
Cheers!
Labels:
diet,
disability,
fitness,
health,
stress
Wednesday, January 26, 2011
Pobody's Nerfect
I want to talk about a topic near and dear to my heart. Food. The bane of dieters' existence, the enemy of every scale, the villain in every triumphant weight loss story. That's right, none other than that which we cannot live without, and don't want to live with...food.
When physical limitations come into play, reducing the number and restricting the type of exercise a person can do, the relationship with food can be even more strained. The problem is the perception that food is the enemy. This has never been less true than it is today. The problem is not that we're eating, but we're eating the wrong things. Being healthy has never been about keeping a strict diet of organic lettuce and water. It's about making good choices, and doing your part to enhance the flavor of those choices. And yes, the occasional indulgence in the molten lava cake with the liquid fudge center (*cough* just an example, of course...*cough*) is included in that. No one makes the exact right food choices every single time; it's long past time to end the guilt ridden misery that comes from making the occasional unhealthy choice in our diets. If we focus on improving the overall picture of our nutrition, the little indulgences won't affect it.
There is absolutely an emotional component to the food choices we make, and we can learn to steer those emotions as well. If it's been a crappy day, and your emotional response is to reach for a brownie sundae, just stop. First, drink a glass of water. Then have a healthier option, with a piece of dark chocolate after. Savor it, enjoy it, revel in its richness. Your body gets the benefits of the nutrition, and your brain gets to have the indulgence as its end note. This takes some time before it becomes a habit, but it is absolutely doable. And the more this becomes a habit, the less guilt you'll have on those occasions when you make that conscious choice and eat a whole piece of cake.
There are no easy answers to the "perfect" diet. There's one based on blood type, low carb, no carb, low glycemic, high protein, high fiber, low cal, whatever. What it all boils down to is simple math. Calories in need to be less than calories out in order to lose weight. But how you get there is almost as important. After all, eating 1800 calories of chips, pizza and soda will have a much different effect on the body than the same amount of calories consisting of lean protein, fresh fruits and veggies, and complex carbs. If you aren't sure how good something is for you, read the label. No label? Google it. None of this is rocket science, people.
Learning some very basic cooking skills is a fantastic way to enhance your nutritional profile. Experiment with spices, textures, methods of cooking. A pork chop, pan fried to a nice shoe leather consistency, for example, is a completely different meal than a succulent pork chop brushed with an apricot ginger glaze and grilled. (Apologies to my mother in law!) Instead of complaining about the fact that your whiny, picky eater self just can't eat healthy, try actually being proactive and responsible first. You don't have to be a student at the Culinary Institute of America to make a delicious, healthy meal.
First and foremost, food is fuel. But as humans, we do get profound sensory delight from it. There is no reason not to relish the tastes and textures on our plate, as well as a beautiful presentation. It takes almost no time or effort to plate a meal in an attractive manner, but when do we take the time? We're in such a rush for that instant gratification that we fail to make even the smallest gestures. Slow down. Enjoy each bite. Feel the textures, consider the taste. What spices or flavors can you pick out on your tongue? Do you recognize the ingredients?
In order to improve our relationship with our food, we will need to put in some time, some effort, and a whole lot of love. I'd love to hear from others on what meals they like to prepare and the amazing feedback they get.
When physical limitations come into play, reducing the number and restricting the type of exercise a person can do, the relationship with food can be even more strained. The problem is the perception that food is the enemy. This has never been less true than it is today. The problem is not that we're eating, but we're eating the wrong things. Being healthy has never been about keeping a strict diet of organic lettuce and water. It's about making good choices, and doing your part to enhance the flavor of those choices. And yes, the occasional indulgence in the molten lava cake with the liquid fudge center (*cough* just an example, of course...*cough*) is included in that. No one makes the exact right food choices every single time; it's long past time to end the guilt ridden misery that comes from making the occasional unhealthy choice in our diets. If we focus on improving the overall picture of our nutrition, the little indulgences won't affect it.
There is absolutely an emotional component to the food choices we make, and we can learn to steer those emotions as well. If it's been a crappy day, and your emotional response is to reach for a brownie sundae, just stop. First, drink a glass of water. Then have a healthier option, with a piece of dark chocolate after. Savor it, enjoy it, revel in its richness. Your body gets the benefits of the nutrition, and your brain gets to have the indulgence as its end note. This takes some time before it becomes a habit, but it is absolutely doable. And the more this becomes a habit, the less guilt you'll have on those occasions when you make that conscious choice and eat a whole piece of cake.
There are no easy answers to the "perfect" diet. There's one based on blood type, low carb, no carb, low glycemic, high protein, high fiber, low cal, whatever. What it all boils down to is simple math. Calories in need to be less than calories out in order to lose weight. But how you get there is almost as important. After all, eating 1800 calories of chips, pizza and soda will have a much different effect on the body than the same amount of calories consisting of lean protein, fresh fruits and veggies, and complex carbs. If you aren't sure how good something is for you, read the label. No label? Google it. None of this is rocket science, people.
Learning some very basic cooking skills is a fantastic way to enhance your nutritional profile. Experiment with spices, textures, methods of cooking. A pork chop, pan fried to a nice shoe leather consistency, for example, is a completely different meal than a succulent pork chop brushed with an apricot ginger glaze and grilled. (Apologies to my mother in law!) Instead of complaining about the fact that your whiny, picky eater self just can't eat healthy, try actually being proactive and responsible first. You don't have to be a student at the Culinary Institute of America to make a delicious, healthy meal.
First and foremost, food is fuel. But as humans, we do get profound sensory delight from it. There is no reason not to relish the tastes and textures on our plate, as well as a beautiful presentation. It takes almost no time or effort to plate a meal in an attractive manner, but when do we take the time? We're in such a rush for that instant gratification that we fail to make even the smallest gestures. Slow down. Enjoy each bite. Feel the textures, consider the taste. What spices or flavors can you pick out on your tongue? Do you recognize the ingredients?
In order to improve our relationship with our food, we will need to put in some time, some effort, and a whole lot of love. I'd love to hear from others on what meals they like to prepare and the amazing feedback they get.
Labels:
cooking,
disability,
food,
health
Sunday, January 23, 2011
STOP! Lesson time!
Ladies and gentlemen of general society, please have a seat at your desks. School is in session.
For a person with limitations on what can be done in the physical world, it's very easy to have opinions and perceptions written in black Sharpie before you're even introduced to the person who's making them. Many people have "blind" limitations -- meaning that their shoulder, for example, may not move like an unimpeded person's shoulder moves, but they don't wear a sling or adaptive device. People don't realize there's an issue unless they're either told, or the person makes an adaptive motion such as switching a burden to the other side. For me, though, the black brace and the cane are like my own personal neon sign screaming "OMG! DISABLED PERSON ON THE LOOSE!" to everyone who crosses my path. As someone who prefers to not be in the spotlight, I'm sure you can imagine how happy this makes me.
One of the most common assumptions is that I'm incapable of opening doors. If I get to a door with someone behind me, I tend to hold the door for the person. What can I say? My parents raised me to be polite. The usual response that I get is something like, "Oh gosh, I should be holding the door for you!" Now, I realize that the person is just trying to be nice. But I promise you, that while my knee is a mess, my arms are both quite solid. I honestly can manage to open a door, and with either one!
The really nice check-out staff at my favorite grocery store has been "trained" for lack of a better word, to know that I am most likely going to refuse help out with my groceries. This has nothing to do with foolish pride: the fact is that I lean on the cart when I walk, and it takes some pressure off of my leg. It also provides a little extra stability as I go down the ramps to the parking lot. So no, thank you; unless I have more than one cart worth of stuff, in which case I will generally bring a kid, I do not want you to take my grocery cart for me. They still offer with a smile, and I refuse with a smile. But they don't push the issue, for which I am eternally grateful. I have actually had a person pull my cart away from me, telling me that he will be helping me with my groceries. After I recovered my balance from having it disrupted, a brief, quiet conversation with his manager proved him wrong.
Yesterday, I executed a surprise for my kids: a day trip to the mountains to go snow tubing. I grew up in the Northeast, where I went sledding every possible moment during the winter, usually down a stupidly dangerous track in the woods. The idea for the trip started here. And I knew full well when I showed up, that the automatic assumption would be that I was a spectator, not a participant. The harried girl behind the tall counter didn't see anything from the chest down, so there wasn't even a blink when I paid for 5 tickets. But I saw her eyes go as wide as saucers when she saw me laughing with my family as we headed out the door of the lodge to get our tubes, bright orange tags on our jacket zippers. I grabbed my tube and went to the conveyor belt with my kids and headed up to the top. The attendant gave me a glance, but didn't say anything. I got some startled looks from people as I chose a tubing lane, but when I shoved off and flipped into the tube, holding my cane under one arm, that's when people's jaws started to hit the snow. For the rest of the day, people on the conveyor belt heading up the side would point and stare when I'd go flying by on a tube. My own kids didn't even blink at the idea that I would be sliding with them, as this wasn't anything that could really endanger me. But to everyone else, I was an anomaly at which they were astounded.
Throughout the day, I ignored people who looked at me like I was a circus attraction. I did respond politely to those who ventured to speak to me. After all, they were just asking a question, which I respect a whole lot more than a perceived assumption. But it really led me to realize just how much society assumes about a person when they have a visible limitation. Now, the one attendant at the top, when I flopped into the tube a little early, howled with laughter when he saw me use my cane to give myself an extra push. He yelled, "Use it like an oar!" I loved that. Another attendant, saw me come by again chuckled and said, "You're better at this than half the able bodied people!" I just laughed and said, "Hey, you manage your disability or it manages you. Mine will never manage me!" as I slid off down the hill.
We may never be able to change the way people think when they see a disabled person on the street; to make them realize that we have a disability, as opposed to being a disability. But we can definitely drop some of our own fears, and embrace our own sense of adventure and fun. We can show by our actions that we are not delicate little orchids to be kept on a shelf in a hot house when the world is happening outside. We need to be the ones who live our lives, find ways to adapt when we can and still do the things we want to do.
Only then, will the stares of incredulity dissipate like our breath in the snow.
For a person with limitations on what can be done in the physical world, it's very easy to have opinions and perceptions written in black Sharpie before you're even introduced to the person who's making them. Many people have "blind" limitations -- meaning that their shoulder, for example, may not move like an unimpeded person's shoulder moves, but they don't wear a sling or adaptive device. People don't realize there's an issue unless they're either told, or the person makes an adaptive motion such as switching a burden to the other side. For me, though, the black brace and the cane are like my own personal neon sign screaming "OMG! DISABLED PERSON ON THE LOOSE!" to everyone who crosses my path. As someone who prefers to not be in the spotlight, I'm sure you can imagine how happy this makes me.
One of the most common assumptions is that I'm incapable of opening doors. If I get to a door with someone behind me, I tend to hold the door for the person. What can I say? My parents raised me to be polite. The usual response that I get is something like, "Oh gosh, I should be holding the door for you!" Now, I realize that the person is just trying to be nice. But I promise you, that while my knee is a mess, my arms are both quite solid. I honestly can manage to open a door, and with either one!
The really nice check-out staff at my favorite grocery store has been "trained" for lack of a better word, to know that I am most likely going to refuse help out with my groceries. This has nothing to do with foolish pride: the fact is that I lean on the cart when I walk, and it takes some pressure off of my leg. It also provides a little extra stability as I go down the ramps to the parking lot. So no, thank you; unless I have more than one cart worth of stuff, in which case I will generally bring a kid, I do not want you to take my grocery cart for me. They still offer with a smile, and I refuse with a smile. But they don't push the issue, for which I am eternally grateful. I have actually had a person pull my cart away from me, telling me that he will be helping me with my groceries. After I recovered my balance from having it disrupted, a brief, quiet conversation with his manager proved him wrong.
Yesterday, I executed a surprise for my kids: a day trip to the mountains to go snow tubing. I grew up in the Northeast, where I went sledding every possible moment during the winter, usually down a stupidly dangerous track in the woods. The idea for the trip started here. And I knew full well when I showed up, that the automatic assumption would be that I was a spectator, not a participant. The harried girl behind the tall counter didn't see anything from the chest down, so there wasn't even a blink when I paid for 5 tickets. But I saw her eyes go as wide as saucers when she saw me laughing with my family as we headed out the door of the lodge to get our tubes, bright orange tags on our jacket zippers. I grabbed my tube and went to the conveyor belt with my kids and headed up to the top. The attendant gave me a glance, but didn't say anything. I got some startled looks from people as I chose a tubing lane, but when I shoved off and flipped into the tube, holding my cane under one arm, that's when people's jaws started to hit the snow. For the rest of the day, people on the conveyor belt heading up the side would point and stare when I'd go flying by on a tube. My own kids didn't even blink at the idea that I would be sliding with them, as this wasn't anything that could really endanger me. But to everyone else, I was an anomaly at which they were astounded.
Throughout the day, I ignored people who looked at me like I was a circus attraction. I did respond politely to those who ventured to speak to me. After all, they were just asking a question, which I respect a whole lot more than a perceived assumption. But it really led me to realize just how much society assumes about a person when they have a visible limitation. Now, the one attendant at the top, when I flopped into the tube a little early, howled with laughter when he saw me use my cane to give myself an extra push. He yelled, "Use it like an oar!" I loved that. Another attendant, saw me come by again chuckled and said, "You're better at this than half the able bodied people!" I just laughed and said, "Hey, you manage your disability or it manages you. Mine will never manage me!" as I slid off down the hill.
We may never be able to change the way people think when they see a disabled person on the street; to make them realize that we have a disability, as opposed to being a disability. But we can definitely drop some of our own fears, and embrace our own sense of adventure and fun. We can show by our actions that we are not delicate little orchids to be kept on a shelf in a hot house when the world is happening outside. We need to be the ones who live our lives, find ways to adapt when we can and still do the things we want to do.
Only then, will the stares of incredulity dissipate like our breath in the snow.
Friday, January 21, 2011
Deprived? Hmm. Maybe not...
When the topic of exercising with physical limitations comes up in conversation, it's often met with a flippant response of, "Whatever. Just swim instead." Well, sure! I'll just come home from work, make dinner, and hop right into my indoor, heated lap pool that I had installed last month. Oh wait...
There are hundreds of "guaranteed weight loss" machines out there, just waiting for the desperate people, hoping to lose some of their fluffiness with the very least amount of effort. Problem is...most of these are absolutely not possible for people with orthopaedic impairments. This constant barrage of "it's so easy!" being met with, "yeah, but I can't use it" can get old very fast, creating a huge level of frustration.
To try to alleviate some of that frustration, and help my fellow Adapters to realize that we don't have it quite as bad as we thought, I offer up the following examples of exercise equipment that we cannot use:
First up, I give you the i-rider horseback riding machine. (Just gonna take a second and let that name sink in...) You can ride your way to a stronger core, and um...well....maybe give yourself a nice ride while you're at it! With the instability in my leg, along with the lack of strength, there is no way I could handle this. And somehow, I'm glad! Want to see a video of this little beauty? Oh yeah, baby. You know you do!
*cough*
Ok, moving on. Here's another gem of a machine that has all the ladies lining up. It's called the Ab Circle. this little wonder has you on your knees, leaning over, and either swinging your bottom half back and forth like a cat in heat, or opening and closing your legs like a...well, I won't finish that one. Instead, I'll just let you see for yourself:
Don't bother with the whole thing. Just watch the snippet starting at 1:20. It'll be enough. Every man wants to buy one of these for his woman, but gentlemen, please take my advice and don't do it.
And of course, we always play fair at the Imperfectionist. Men have their "special" equipment too! From the time they are adolescents, boys need a way to strengthen their arm muscles. Poor little scrawny boys get picked on! Let's help them be the hot, buff Adonises that they want to be. Get every boy their very own Shake Weight!
There are hundreds of "guaranteed weight loss" machines out there, just waiting for the desperate people, hoping to lose some of their fluffiness with the very least amount of effort. Problem is...most of these are absolutely not possible for people with orthopaedic impairments. This constant barrage of "it's so easy!" being met with, "yeah, but I can't use it" can get old very fast, creating a huge level of frustration.
To try to alleviate some of that frustration, and help my fellow Adapters to realize that we don't have it quite as bad as we thought, I offer up the following examples of exercise equipment that we cannot use:
First up, I give you the i-rider horseback riding machine. (Just gonna take a second and let that name sink in...) You can ride your way to a stronger core, and um...well....maybe give yourself a nice ride while you're at it! With the instability in my leg, along with the lack of strength, there is no way I could handle this. And somehow, I'm glad! Want to see a video of this little beauty? Oh yeah, baby. You know you do!
*cough*
Ok, moving on. Here's another gem of a machine that has all the ladies lining up. It's called the Ab Circle. this little wonder has you on your knees, leaning over, and either swinging your bottom half back and forth like a cat in heat, or opening and closing your legs like a...well, I won't finish that one. Instead, I'll just let you see for yourself:
Don't bother with the whole thing. Just watch the snippet starting at 1:20. It'll be enough. Every man wants to buy one of these for his woman, but gentlemen, please take my advice and don't do it.
And of course, we always play fair at the Imperfectionist. Men have their "special" equipment too! From the time they are adolescents, boys need a way to strengthen their arm muscles. Poor little scrawny boys get picked on! Let's help them be the hot, buff Adonises that they want to be. Get every boy their very own Shake Weight!
So you see, you don't necessarily have to feel left out of the mainstream, simply because your body won't allow you to use popular exercise equipment. Sometimes all you need is a partner!
Labels:
disability,
exercise,
fitness,
health
Thursday, January 20, 2011
Within the navigational beacons*
Dinner last night was fantastic. I'd scored some tilapia fillets on sale B1G1, so I decided to make them because I knew it'd be quick and easy. I know a lot of people bake theirs, but I love broiled fish. Leftover buttermilk became the dredging vehicle, and then a mixture of panko and parmesan cheese combined for the crust. I broiled them for 4min on one side, flipped them, and put them back in for 5 more min. I know I probably should've gone green for a side, but we did carrots instead. Thew hole family raved, and the teenagers went back for seconds. Now I wish I'd gotten more of them!
I had stuff to do last night, but had also planned on a light workout as well. I've been in some pain lately, so I didn't want to push too hard. However, one of the biggest mistakes someone with a disability can make is to stop moving completely. Joints stiffen, muscles get tight, and soreness will increase, causing a nasty little cycle to ensue. Bad move.
Every person who works out needs to learn and understand the difference between "sore" and "painful." They are two vastly different things when it comes to exercise, and mistaking one for the other can have disastrous results. When you lift weights and feel it the next day as your muscles protest your attempts to get out of bed and in the shower, that's soreness. This is actually a good thing, as your muscle fibers break down, and then rebuild. Stretching can ease this, along with heat and massage. Resting the muscles before pushing them again is essential, but there is no reason to stop exercising. In the same example, though, if you are lifting and feel a sudden, sharp pain in a muscle or joint, it's time to stop immediately. At this point, continuing could lead to some serious damage. You need to assess whether it was a momentary torque in your body, or whether there is an actual injury that requires professional attention.
When a disability is brought into play, whether it's temporary or chronic, pain becomes a whole 'nother issue. In rehabilitative therapy, there is and element of working through the pain a little in order to push your body into working again. A lot of this come in knowing your own body, but be careful not to create excuses. There are people in my life who scold me for doing various activities even though I'm in pain, and I have to laugh. My honest response is, "If I 'rested' every time I was in pain, my sorry tail would never get up off the couch." There's no exaggeration there. I am in pain pretty much most of the time, but I am very used to it. It's relative low level, controlled by medication, and I can ignore it without any trouble. When it escalates, then I need to pay attention and make a better assessment.
Now, most people are pretty familiar with the visual pain scale, simply by having been to a doctor with an injury or illness. It usually looks something like this standard one:
However, mine is slightly different than this one. I thought I'd share it, simply to give you a little more insight into my perspective:
Pain, as a general rule, doesn't so much make me sad or depressed as it gets me mad. It hinders me from doing the things I want to do, and so I get angry. In figure 1, you see my normal, dorky self. At figure 2, the pain level is rising such that I now notice it. But it's more of an eye-rolling annoyance than much else, and I can go back to whatever activity I was enjoying. At figure 3, I then need to address it. And if I have to address it, I'm seriously pissed, because it means that I have to stop what I'm doing, and most likely use [more] mobility assistants or take to the couch. If I hit figure 4, I don't actually cry, but I usually want to. (No judgments on people who cry; I'm just not much of a crier for whatever reason.) At this point, I am on my back with the knee elevated, packed in ice, and am popping pain killers like Pez.
You should always have your own version of this if you're going to exercise when you have limitations. You need to know your body's boundaries for when it's ok to "push through it" or "ignore it" and when you need to "just stop. As in now." Last night, I was hovering around figure 2, so I went ahead and did my push-ups on the ball, and then used the foam roller to stretch out my back and hips. I had wanted to do some all over stretching, but I've been at this long enough to know that it would not have been a wise idea. My knee was swelling and slipping, which just would've gotten worse.
Whatever symptoms you experience along with pain need to be monitored closely to figure out your own baseline. For me, it's swelling and instability. For others, it might be totally different. Learn your body, learn your limitations, and listen to them.
That said? No excuses. No playing the pain card unless you have to. Don't ever use your disability as an excuse: you deserve better than that. If you need to skip a workout, or cut it short, then do it. Own it, accept it, and let it go. But respect your body and your spirit enough to only do that when you truly have to.
Strength is within your reach -- you just have to stretch a little to get it.
*If you get this reference, you get a zillion and five brownie points!
I had stuff to do last night, but had also planned on a light workout as well. I've been in some pain lately, so I didn't want to push too hard. However, one of the biggest mistakes someone with a disability can make is to stop moving completely. Joints stiffen, muscles get tight, and soreness will increase, causing a nasty little cycle to ensue. Bad move.
Every person who works out needs to learn and understand the difference between "sore" and "painful." They are two vastly different things when it comes to exercise, and mistaking one for the other can have disastrous results. When you lift weights and feel it the next day as your muscles protest your attempts to get out of bed and in the shower, that's soreness. This is actually a good thing, as your muscle fibers break down, and then rebuild. Stretching can ease this, along with heat and massage. Resting the muscles before pushing them again is essential, but there is no reason to stop exercising. In the same example, though, if you are lifting and feel a sudden, sharp pain in a muscle or joint, it's time to stop immediately. At this point, continuing could lead to some serious damage. You need to assess whether it was a momentary torque in your body, or whether there is an actual injury that requires professional attention.
When a disability is brought into play, whether it's temporary or chronic, pain becomes a whole 'nother issue. In rehabilitative therapy, there is and element of working through the pain a little in order to push your body into working again. A lot of this come in knowing your own body, but be careful not to create excuses. There are people in my life who scold me for doing various activities even though I'm in pain, and I have to laugh. My honest response is, "If I 'rested' every time I was in pain, my sorry tail would never get up off the couch." There's no exaggeration there. I am in pain pretty much most of the time, but I am very used to it. It's relative low level, controlled by medication, and I can ignore it without any trouble. When it escalates, then I need to pay attention and make a better assessment.
Now, most people are pretty familiar with the visual pain scale, simply by having been to a doctor with an injury or illness. It usually looks something like this standard one:
However, mine is slightly different than this one. I thought I'd share it, simply to give you a little more insight into my perspective:
Pain, as a general rule, doesn't so much make me sad or depressed as it gets me mad. It hinders me from doing the things I want to do, and so I get angry. In figure 1, you see my normal, dorky self. At figure 2, the pain level is rising such that I now notice it. But it's more of an eye-rolling annoyance than much else, and I can go back to whatever activity I was enjoying. At figure 3, I then need to address it. And if I have to address it, I'm seriously pissed, because it means that I have to stop what I'm doing, and most likely use [more] mobility assistants or take to the couch. If I hit figure 4, I don't actually cry, but I usually want to. (No judgments on people who cry; I'm just not much of a crier for whatever reason.) At this point, I am on my back with the knee elevated, packed in ice, and am popping pain killers like Pez.
You should always have your own version of this if you're going to exercise when you have limitations. You need to know your body's boundaries for when it's ok to "push through it" or "ignore it" and when you need to "just stop. As in now." Last night, I was hovering around figure 2, so I went ahead and did my push-ups on the ball, and then used the foam roller to stretch out my back and hips. I had wanted to do some all over stretching, but I've been at this long enough to know that it would not have been a wise idea. My knee was swelling and slipping, which just would've gotten worse.
Whatever symptoms you experience along with pain need to be monitored closely to figure out your own baseline. For me, it's swelling and instability. For others, it might be totally different. Learn your body, learn your limitations, and listen to them.
That said? No excuses. No playing the pain card unless you have to. Don't ever use your disability as an excuse: you deserve better than that. If you need to skip a workout, or cut it short, then do it. Own it, accept it, and let it go. But respect your body and your spirit enough to only do that when you truly have to.
Strength is within your reach -- you just have to stretch a little to get it.
*If you get this reference, you get a zillion and five brownie points!
Labels:
disability,
fitness,
limitations,
pain,
workouts
Wednesday, January 19, 2011
Up the yin yang
Yeah, ok, so my sense of humor is a little warped. No big surprise to those who know me, I'm sure.
There were some positives and some negatives yesterday, so I figured I would lay those out before I get to my planned topic for today.
I did make the roasted butternut squash soup, using a bit of vindaloo and substituting Greek yogurt for heavy cream to add protein. Woohoo! *snork* Not so much. Apparently, most of my family (sans one child) does not like butternut squash. The two guys tried it, gagged, and set it back down. One girl expressed great gratitude that she was away at college and missed it, and the other girl ate it, but didn't want more. I tried to like it, but failed. Yeah, that pot went down the disposal. Blech.
However, I did do my core workout, and I also used the foam roller to stretch out my back. This segues beautifully into today's topic, which is the idea of using some basic tools to adapt some exercises and also to protect injured or sore body parts.
To do any core work, I use a basic therapy ball. I couldn't for the life of me tell you the brand name, but it cost me around $25 at Target and looks something like this one:
This protects my lower back, and keeps me from having to get down on the floor and back up. And really, for my own body, it's more effective because I can start from a slight arch instead of 180 degrees, getting a better workout for my ab muscles. On adaptation I have made is to lie with my knees on the top of the ball and my hands on the floor. I can do push-ups this way, because it doesn't involve the leg strength and balance that traditional ones do. I definitely get as much of a work out as anyone else, considering I'm starting from nearly flat and then going down and back up. Works well!
Another cool thing I found and asked for at Christmas was this:
You can read the description here: https://www.rejuvenationrehab.com/product/alignment-mobility-kit. (Mine came from Target.)
Now, I have a dear friend who is an athletic trainer who nearly skinned me for using this on my IT (ilio-tibial) bands as shown above. Mine are a mess, but I was honestly stunned at the level of pain I experienced when I tried to use it to massage them. Wow. However, let me say that using this thing on my back, both vertically and horizontally, has been a-freakin-mazing. My back gets really tight really fast, and this has helped me stay loose. I love it. I can also use it on my quads/hamstring and my calves as well.
Let me be clear, though: I am by no means trying to say that people should run out and buy these items. I'm not about product endorsement or advertising or whatever. I am merely sharing what I am using to adapt some exercises and help my own body. If anyone has recommendations or options they'd like to share, I would love to hear them!
Tonight's plan is to do push-ups on the ball and then do all-over stretching. My joints and muscles have been tight, which just makes me more sore in the damp, winter weather.
There were some positives and some negatives yesterday, so I figured I would lay those out before I get to my planned topic for today.
I did make the roasted butternut squash soup, using a bit of vindaloo and substituting Greek yogurt for heavy cream to add protein. Woohoo! *snork* Not so much. Apparently, most of my family (sans one child) does not like butternut squash. The two guys tried it, gagged, and set it back down. One girl expressed great gratitude that she was away at college and missed it, and the other girl ate it, but didn't want more. I tried to like it, but failed. Yeah, that pot went down the disposal. Blech.
However, I did do my core workout, and I also used the foam roller to stretch out my back. This segues beautifully into today's topic, which is the idea of using some basic tools to adapt some exercises and also to protect injured or sore body parts.
To do any core work, I use a basic therapy ball. I couldn't for the life of me tell you the brand name, but it cost me around $25 at Target and looks something like this one:
This protects my lower back, and keeps me from having to get down on the floor and back up. And really, for my own body, it's more effective because I can start from a slight arch instead of 180 degrees, getting a better workout for my ab muscles. On adaptation I have made is to lie with my knees on the top of the ball and my hands on the floor. I can do push-ups this way, because it doesn't involve the leg strength and balance that traditional ones do. I definitely get as much of a work out as anyone else, considering I'm starting from nearly flat and then going down and back up. Works well!
Another cool thing I found and asked for at Christmas was this:
You can read the description here: https://www.rejuvenationrehab.com/product/alignment-mobility-kit. (Mine came from Target.)
Now, I have a dear friend who is an athletic trainer who nearly skinned me for using this on my IT (ilio-tibial) bands as shown above. Mine are a mess, but I was honestly stunned at the level of pain I experienced when I tried to use it to massage them. Wow. However, let me say that using this thing on my back, both vertically and horizontally, has been a-freakin-mazing. My back gets really tight really fast, and this has helped me stay loose. I love it. I can also use it on my quads/hamstring and my calves as well.
Let me be clear, though: I am by no means trying to say that people should run out and buy these items. I'm not about product endorsement or advertising or whatever. I am merely sharing what I am using to adapt some exercises and help my own body. If anyone has recommendations or options they'd like to share, I would love to hear them!
Tonight's plan is to do push-ups on the ball and then do all-over stretching. My joints and muscles have been tight, which just makes me more sore in the damp, winter weather.
Monday, January 17, 2011
The Elusive Quest for Perfection
...is a total crock of shit. There. I said it. Pick up any health and fitness magazine, and it's filled with men and women with already-perfect bodies doing exercises designed to help them attain and even more perfect body! Just 20 minutes a day and you too, can look like a super model!
Riiight. So anyhow, despite my derision at the disproportionate body image that society, combined with the media, has convinced women that they need to achieve (and maintain!), I too, find myself at least attempting to look more like the ideal and less like...well...me. Now, there isn't a person I know who couldn't stand to tweak their diets a little bit. Pobody's Nerfect, and we all have our little "sins" that we choose not to completely leave. Now, pllease note the use of the word "choose." That was very deliberate, as what we put down our gullets every day is a choice. I refuse to be one of those people who doesn't take responsibility for their health, and I won't support those who do so.
However, there is an element of health that is sadly neglected by some, embraced by others, and can appear very inaccessible to a large, silent group of people. Those same fitness magazines offer fantastic tips for adding weight loss moves into our everyday lives: park far away from the door, take the stairs, get a pedometer and reach for that 10,000 steps a day. The exercises they feature are fat busting! muscle building! toning! optimizing! the key too all things blissful and perfect...oh wait. Sorry. Uh, went a little too far.
Aaaaanyhow. There are those of us who have physical limitations that restrict us from doing a lot of what is touted as a great workout. For some, it's chronic back problem. Some have had shoulder surgery. For me, it's my knee. It was ruined by a doctor's negligence back in December of 2004, and since then I have worn an ACL brace and walked with a cane to prevent falls. According to a Functional Capacity Evaluation, I have 8% of the functioning in my right leg. I walk, but cannot walk far. I cannot hold my leg up in the air or balance with it. Kneeling/squatting/lunging and other similar activities are completely out of the question.
So what are my options? How does someone like me work out, lose weight, get in shape? That's the point of this blog. My goal is to share my own journey, and hopefully have others like me come along. I'm not the only person with a disability who wants to get my body looking and feeling better, and I know it. It's time that we got together and created our own ways and then shared them with each other. Whether it's recipes, workout moves that target muscle groups and avoid others, safe alternatives for stretching, I want to hear it.
I'll be posting examples of my own, but my hope is to get people reading and submitting theirs too. I'd love to build a network of people who are reclaiming their strength and their health, and doing it on their own terms.
Welcome!
Riiight. So anyhow, despite my derision at the disproportionate body image that society, combined with the media, has convinced women that they need to achieve (and maintain!), I too, find myself at least attempting to look more like the ideal and less like...well...me. Now, there isn't a person I know who couldn't stand to tweak their diets a little bit. Pobody's Nerfect, and we all have our little "sins" that we choose not to completely leave. Now, pllease note the use of the word "choose." That was very deliberate, as what we put down our gullets every day is a choice. I refuse to be one of those people who doesn't take responsibility for their health, and I won't support those who do so.
However, there is an element of health that is sadly neglected by some, embraced by others, and can appear very inaccessible to a large, silent group of people. Those same fitness magazines offer fantastic tips for adding weight loss moves into our everyday lives: park far away from the door, take the stairs, get a pedometer and reach for that 10,000 steps a day. The exercises they feature are fat busting! muscle building! toning! optimizing! the key too all things blissful and perfect...oh wait. Sorry. Uh, went a little too far.
Aaaaanyhow. There are those of us who have physical limitations that restrict us from doing a lot of what is touted as a great workout. For some, it's chronic back problem. Some have had shoulder surgery. For me, it's my knee. It was ruined by a doctor's negligence back in December of 2004, and since then I have worn an ACL brace and walked with a cane to prevent falls. According to a Functional Capacity Evaluation, I have 8% of the functioning in my right leg. I walk, but cannot walk far. I cannot hold my leg up in the air or balance with it. Kneeling/squatting/lunging and other similar activities are completely out of the question.
So what are my options? How does someone like me work out, lose weight, get in shape? That's the point of this blog. My goal is to share my own journey, and hopefully have others like me come along. I'm not the only person with a disability who wants to get my body looking and feeling better, and I know it. It's time that we got together and created our own ways and then shared them with each other. Whether it's recipes, workout moves that target muscle groups and avoid others, safe alternatives for stretching, I want to hear it.
I'll be posting examples of my own, but my hope is to get people reading and submitting theirs too. I'd love to build a network of people who are reclaiming their strength and their health, and doing it on their own terms.
Welcome!
Labels:
body image,
disability,
fitness,
health
Subscribe to:
Posts (Atom)




